Lost in Austin, scared, strung out and confused, trying to figure it out, something out, nothing out. Very not good situation. Dangerous.
Thanks Pete and Scrounge Lounge. Continue reading Healing Journey 10: Considering Acceptance and Over-Exertion
Tag Archives: cfsme
Rallying with my favourite things…
Rallying with my favourite things:
1) John Coltrane
2) Red Corduroy pants
3) Things to mail to loved ones
4) Fresh air with rain impending
Things I Love…
Things I Love:
1) Seeing my friends enjoy great success
2) Inspiring with postcards
3) Hugs
Woke up feeling…
Woke up feeling scared & confused about life &; *everything*. This illness is a trickster, not sure who i’ll be each day. It’s not me. #peace
Healing Journey 9: Re-Creation, What Comes Next?
After a fitful sleep, I share thoughts on my illness and the measures i’m taking to heal. Riffs include: love, gratitude, Phil Lesh, resurrection, cognitive behaviour therapy, learning to let go, Tarot reading, giving, accepting, writing, evolving and various treatments including essential oils, acupuncture, dry needling, CT/MRI/Ultrasound, various ‘scopys, bloodwork, Chinese teas, Jamaica life, my ole dead Dad, postcards, insomnia, arts n crafts, virtuous circles, open culture, Kerouac, Rilke, Buddha and my Mom. Continue reading Healing Journey 9: Re-Creation, What Comes Next?
Pardon my general grumpiness…
Pardon my general grumpiness today. I seem to have completely lost my ability to sleep. This is despite the massive amount of toxic drugs I’m taking parentheses prescription of course) parentheses I’ve come outside to sit in the sun in my pirate pyjamas and listen to birds to try to tap the fuck up. Trying to be positive trying to be optimistic I have plans, desires and inspiration for everyone but myself.
Logan, UT
… during which someone punched me repeatedly…
Went to bed at about 10:30 last night, after a rest from about three to 7 o’clock, now waking up just before 1pm but feeling like I slept for about two hours during which someone punched me repeatedly.
This sickness is really getting me down but the love from all my friends including schemes and offers for road trips, flights, kidnappings, Hot Springs, hugs and saunas is keeping me from going crazy.
Best love to all of you!
Ps first wave of postcards invades the post office today (if I can manage to get over there).
Wonder who has a joint to share in Logan Utah? #NSA
Logan, UT
re-firing and reconnecting neural pathways…
As I am slowly coming back to life, I am re-firing and reconnecting various neural pathways. It’s kind of hard to explain but some of me works and some of me doesn’t. Anyhow, I am doing lots of hand eye coordination crafts and memory/organizational tasks (i.e. organizing a concert ticket journal, alphabetizing records, etc) and, I frequently hand make these scrapbook/journal/notebook type creations. Basically, a board game as a backing board, I have to be mixed block of paper, a piece of calendar for a cover, three holes drilled in the side, sewn up with him thread, binding cover glued to side.
Logan, UT
Healing Journey 8: Cosmic Life Stories from the Park
While awaiting a group therapy session, I (daveo) sit in a playground hut to recount my father’s recent death and explain more about my challenges with Central Sensitivity Syndrome, Fibromyalgia, and related syndromes.
Plus I mention my spoken word performance on Bad Wougar’s debut album and gives thanks for the all the cards, letters, albums and love sent my way.
Made with love and affection. Continue reading Healing Journey 8: Cosmic Life Stories from the Park
Healing Journey 7: Facing Mortality with My Dad
Outside of Surrey Memorial Hospital on a personal medical break, I share candid updates about the condition of my Dad battling various cancers. As i struggle with the inevitable, i contrast with my now seemingly minor illnesses and ponder “What comes next?” for me and for my Dad.
Continue reading Healing Journey 7: Facing Mortality with My Dad