Tag Archives: healing

Me: looking exhausted & ‘real’

There is a part in Wes Anderson’s spectacular film “Isle of dogs” where the beleaguered canines are given a serum injection which instantly cures dog flu, snout fever, and solves the proliferation crisis – all in one shot. The first dog “Chief” excitedly remarks how his eyesight, equilibrium, nervous system issues are all suddenly is resolved as he brightens up with a spark. Eventually, I dream that there will be a similar solution for MECFS.

As I go along, I *apparently* snap ridiculous and certainly unnecessary and unflattering photos of myself looking exhausted. Usually, I share the photos where I manage a smile. (if you’re smart, you know my “tell” of when I am manufacturing a smile). #PokerPlayersNotice. Some of these snaps of possibly on other social channels as a signal that I’m still alive.

I’m not sure why, it’s only sort of a recent habit, but I think it’s because in the future I can look back and say “right on Davey, you hung in there, you didn’t give up, you didn’t take the exit, and look at you, you’re doing right now”.

Continue reading Me: looking exhausted & ‘real’

Pacifica Pier: versions & evidence of me, evolving

During my “missing years” or the “healing ramble” or whatever, there was sort of a circuit of safe houses, hideouts and caches i rotated through which included Pacifica, California.

“Im just a constant headache.” is how I felt for a long long time (although I did not paint this myself on the pier)

A couple dear friends there looked out for me as I received of medical treatment there – some planned and some ummmm unintended.

As it goes, while looking for something else, I kept coming across mah ole face on four separate visits and right away could see the change as dealt with so much well, change and loss… “Losing everything” / my health, my erstwhile career, my energy, my mind, myself, my parents, and so much more.

the pier takes and “L” shape / you could often hear circle language is spoken, sometimes kids selling something, crab pots, fishing lines, a few dingy sinks for gutting your catch

The pier would be usually occupied by a scattered assortment of fishers and crab catchers, and others like me, just watching the waves rolling, fog twitching, the occasional hearty surfer, and every once in a while a humpback whale.

As usual, there’s more to say about “all of this” (yes, there’s a pending medical – specific report in the slow moving “healing ramble” series) but for now, I present to you: me & Pacifica pier which was a safe refuge for me as could walk back-and-forth – at the foot is a coffee shop serving clam chowder in a bread bowl and a Matcha latte, the street has so many cute little funky beach ‘shacks’ (any of them cost in million+ now) that, due to zoning regulations & shoreline protection mandates, couldn’t really be changed… so the area of town was sort of stuck in a past decade and showed it’s working class roots and rum running/bootlegging history.

Minor annotations included with the photos. Remarkable to me anyhow & a reminder of what “we” are capable of, I mean if I am able to tough it out, evolve and change with it all, you certainly can.

2014 / not happy with how I found myself in life as it was
2015 / it turns out the “unknown“ was a lot more dangerous than expected / and yes, it was much worse than this suggests
2016 / trying really trying to intrepidly step in to the unknown
2016 / an unexpected and unfortunate trip has no picture of my face but this is the coffee shop at the start of the pier
2018 / came to deposit my mother’s ashes off the end of the pier and took a moment to think about the changes my life would take in the months to come
2017/ Pacifica on a scrapbook and a Lomo rolling with me through Thailand

I Hell<3 Pacifica. Grateful.

wandering, wandering, being grateful and dreaming about the future
and oh how we rambled!

Field Notes: Auroville, observations feeling lost (at first)

Intro / Disclaimer (longer than actual notes): I hesitate to publish this flashback diary, not because I fear away from my notion of embracing translucency in personal archaeology, but rather because these are notes from the first couple of days and after sort of a disconnected start (keep in mind, I had just come out of several weeks of fairly solitary time at an Ayurveda hospital).

Anyhow my (I don’t know how to say it) my “community building instincts” kicked in and I made friends with some fun Italians who had a house and some herb, we did some slacker yoga, met a young Indian man studying sustainable architecture and connected him with the wider hemp as a building material community which has gone on to be fruitful relationships, met some wonderful wise elder ladies from Iceland and Switzerland, sort of fell into my rhythm.

Matrimandir thatta way

Plus, I learned logistics about “how to live there which basically is “if you can contribute something, you can make it happen”.

So this part of the story which sounds a little bit bleak and, in many ways is accurate though as in recent times (as a round this up in 2022,) there are emerging and ongoing controversies about how a place like this should be governed which brings in a lot of questions about privilege, colonialism, ecology, status of the land itself, the intentions of founders (and how much that matters and how is to be interpreted), which all brings tension between long timers, and newer inter-lopers, and the people around the international enclave who are just living and trying to make the best of their life in a larger country which still kind of figuring out who wants to be in the bigger world.

oh here is Matrimandir

So,… there’s this part of the story and then the part where I had to leave suddenly upon the passing of my mother and make a rapid trip to Utah, (talk about culture shock!), on the middle, there were some pleasantness which I’ll try to articulate along the way under separate cover.

In short, I found that there was a need for archivists, librarians, radio talkers, communications types and I suddenly saw how I might fit in and disappear there forever.

Of course I loaded up on artifacts, ephemera and items from the bookstore with the teachings of the founders and various dispatchers and missives about peace and community. (Some made it in to a scrapbook chronicling the heart-wrenching trip from India to Utah and beyond).

I’m saying this because there’s a lot more to say but in the meantime I was also dealing with the crisis of the withdrawal of Rs.1000 and Rs.5000 bank notes from circulation which resulted in empty bank machines, and no way to get cash (which was particularly amusing/ironic in this cashless society when one really needed cash to not use cash – but without a bank account well… folks were flying to Sri Lanka just to exchange money and come back which seems to defeat the whole point of an ecologically sustainable and equitable community!).

As fate (if that’s a thing) had it, things went differently, very differently, but this place remains in my head as I try to sort out the conundrum to address here on these first tentative days, but also in my heart simply for the fact that this kind of “unique/weirdness” exists.

I hope to return, or maybe not, I just hope something like this exists in some utopian form. Yep, one can dream right?

Added a few snapshots in here, others will go in a sort of “in between days” post” (pardon my notes to self).

Oh and more about this time appears in audio form as “Field Notes from Elsehwere, Choogle On #121” in which i tell *way too much* about the missing years.

Auroville Observations

So far, its much more intense than intentional. Can a community grow into a city without bureaucracy, boards, meetings, committees, resolutions, motions, applications, infighting, mandatory contributions and acronyms?

Seems perhaps not, or is it? It seems not. Or is it rule dependent? Or personality driven?

But strong leaders go rogue and sex and power corrode.

Frequent complaining, loud motorbikes, local workers and no hellos and/or Namastes.

I have tea in a stainless steel cup. Will food come to me as a notice my cane? I suspect not.

With respect to intention and effort, are you simply trading one framework for another with new names?

various shrines but not “religious”

The spirituality if any is in the background. “Love” is the word but not evident in action. No hugs, no warmth, not cold communication but hardly an emotional symbiotic place or perhaps not physically evident.

Now, one full day in… Awaiting dinner after fumbling through woods on a dark trail. Why am I so unsatisfied? All afternoon scrapbooking, letter/package making-is it that I don’t understand this place yet? The only people who come to talk are other new people or “tourists”.

restaurants are neither businesses nor not-businesses, cash is no cash but cash

I get that long timers make this community for themselves and not for passers-thru but, still… This is neither a spiritual holy land nor brilliantly efficient or revolutionary self-sufficient nor rock ‘n’ roll fun nor artsy-craftsy-though all those elements exist.

No “religion” per se but cult of work-that’s sort of OK-not warm but not clinical. No hugs still, no hellos or help all day long. So many complainers!

Even at the visitor center-everyone is on mobile’s-services spread out making wearing motorcycles and scooters necessary. Townhall was well, a Townhall. You change money for a card with Receipts and *sign here* for everything.

I buy and read all the books and I’m down with the charter and respect and work but somehow it feels oddly-indifferent to outsiders no doubt and unashamed to say-a shortage of houses but no quick prefab dwellings.

Old ideas are cool with local artisans but if a shortage is thwarting progress from only 2800-ish to a projected (and seemingly unreasonable 50,000) how well it scale?

I don’t care as I like small but masterplan seems dependent on a few “lions” and long timers. Sure it makes sense in a traditional conventional sense but it all seems so fragile and rather self-congratulatory while more or less like the old west of the myths of America – pioneer families incorporating a new town while carpet-baggers roll in often with new ideas and are branded “newcomers” even after a decade or so.

New arrivals who wish to settle are vetted after a year or longer. You have to contribute *something* of value (skills, building, biz…) which the community deems needed.

But the “community leadership” is nebulous and confused (from my vantage point). The newbs post bond in form of an air ticket home – your “home” isn’t here, it’s where you “come from” not like rainbow gatherings where the greeting is “welcome home” – maybe because of the outside political situation, hedging bets with a “punt play”.

The pain and guilt of socioeconomic class is palatable and unresolved.

Yet here I feel so alone despite surrounded by people for the first time in weeks. But no eye contact no warmth – to me at least.

Now I will eat and hope it’s just a bad day despite a walk to the visitor center, watching an introductory film, purchasing books with rupees for which change is difficult, chatting on blankets and towel, getting “non-cash” card, buying items to eat: pears and curd and cookies on bed while I listen to favorite music but all I think is “I am lost.”

mighty banyan tree
Continue reading Field Notes: Auroville, observations feeling lost (at first)

Healing: (very brief) memo from MECFS check-in at Oka-Dai

(while world continues to meltdown in various ways) just finished another multidisciplinary visit to Okayama University Hospital including extended consult with TCM doctor, IV drip of a new pharmacological cocktail, and consult with #MECFS specialist.

Also discussed the terrible pain and impact from the air pressure changes during typhoons, turns out this is very common with people in my situation. Received an “emergency prescription“ for this scenario.

{unrelated photo}

Extended: Neurotropin is main ingredient in cocktail mentioned above (along with vitamin C, and anti-dizziness agent and others) and quite positive impact / also now taking “ketas” (generally used for bronchial asthma), off-label to increase blood flow to brain. Also, lengthy and pleasant consult with traditional Chinese medicine doctor resulted in a new compound of magic powder.

Note to self: provide other Sciency name for ketas, and Chinese name for new compound.

As previous, took a long and memo of notes to be respectful of their time and not to forget anything.

I gave her a book of poetry from Muriel’s Journey “Fire from the Heart” (plus a printed copy of the great article recently in the Atlantic magazine) and my gift was reciprocated by a fantastic book/magazine (in Japan, sometimes these are called “mook”) edited by my doctor with a variety of articles, essays, manga style adaptions and what not about MECFS. I’m really quite amazed to be in this program and to be this “seen”.

Healing Ramble: Story of Ayurveda Health Home, Pokhara, Nepal, 2017

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble Introduction” video for context on this series.

With respect and understanding that not everyone can do *this* – i have another riff about “why” to seek medical care or healing treatment elsewhere (not in US/Canada in this case). For now, use it if you need it, if not just pass along.

Very happy to step into this compound

Handy:

Memo: What follows is transcribed from my diary very shortly after my stay, more or less verbatim, at the risk of being redundant, i have previously shared:

Pokhara, Nepal, 2017

Along my healing journey, I received treatment had the most wonderful Ayurveda Health Home in Pokhara, Nepal.

This company operates two facilities, one in Kathmandu and one in Pokhara where i did my treatment [update: subsequently built a 3rd clinic which looks like a wonderful mix of the 2 and maybe this one is no longer operating?].

The hospitals are part of a German-Nepal partnership. As such, the facility ran on a very prompt German-like schedule, but with exceptionally diligent Ayurvedic practitioners, including several full-time doctor/medical officers.

On the way to AHH

The chief amongst their practitioners is the world-famous Dr. Rishi [update: RIP] – a most elegant and graceful man who emanated healing energy and power. While he is primarily based at the Kathmandu facility, he flew to Pokhara for my intake for which I was very grateful.

Me with Dr Rishi on my “out-take” review in Kathmandu / bless his memory

He had thoroughly reviewed my medical file in advance (including notes from Dr. Veena’s Ayurveda and my tests in Phitsanulok), and the intake was several hours long starting with a long discussion about my symptoms, background and objectives, followed by a massage, then an *extremely thorough* physical inspection.

I should mention that I had originally intended to go back to India and Dr. Veena’s Ayurmantra but for some strange reason, my Indian Visa was declined creating a rapid change of travel plans which became *a little bit expensive* and complicated but I worked through it all by adding in a wander through Malaysia after more hospital tests and treatment in Thailand, OK carry-on…

The days were very busy, but very well organized. I would receive very complete instructions, hands-on, for each of the different treatments, which I would later self-administer.

These included various mouth cleanings, nose cleanings, eye cleanings, eye exercises, meditation, and so on. I also received a series of instructional sessions about the overarching concepts of Ayurveda – the history, background, purposes and information about doshas and the importance of the mind/spirit/body connection.

I also participated on one-on-one yoga sessions. The yoga was very gentle and suited for my body and condition. Rather than complicated poses, started with very simple joint rotations and was very calm rather than stressful experience. (Note: it seems strange to call yoga “stressful“ but doing complicated poses and rapid movement is very difficult for me – as i found later at Peacock Ayurveda Garden).

I received dozens of different kinds of massage, with different oils, different techniques, sometimes two practitioners working on me at once, herbal poultices, salt poultices…

I also went through an extensive series of enemas (don’t freak out)… some to cleanse and some to fortify. It was pretty intense to say the least but I was extremely well supported through the process, and my diet gradually build back up from thin rice porridge and herbal tea, to more substantial food, before I would rejoin the rest of the group for more standard meals.

A warm and welcoming table to convene with other patients
Continue reading Healing Ramble: Story of Ayurveda Health Home, Pokhara, Nepal, 2017

Healing Ramble: Peacock Ayurveda Garden ~ Dikwella, Sri Lanka, 2018

welcome to Peacock Ayurveda Garden

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble Introduction” video for context on this series.

With respect and understanding that not everyone can do *this* – i have another riff about “why” to seek medical care or healing treatment elsewhere (not in US/Canada in this case). For now, use it if you need it, if not just pass along.

Gist: Along my healing journey, I sought treatment at Peacock Ayurveda Clinic in Dikwella (map to Peacock), close to noteworthy Galle, in southern Sri Lanka. I stayed in-patient for three weeks for a complete “panchakarma“ program.

Background: Certainly, Ayurveda has a number of different flavours in terms of quality and type of the facilities… Ranging from “spa-like“ facilities catering primarily to relatively wealthy or western clientele, to very spartan and rustic, often government-run, facilities treating local people (see Dissanayake diary).

Can be difficult to find the exact right fit mixing with medical needs but with comfort and safety enough to have a relatively enjoyable and stress-free period of time.

This is especially important because doing an extended panchakarma (five medicines) program as it can be rather intense. You are quite literally cleaned out inside and out, and your days are quite packed from early morning onwards with yoga, meditation, meals, doctor consultations, various massages, eye, ears, and nose cleaning, and some of the treatments, let’s just say can be rather “delicate“ or even rather embarrassing. Further, the effects of the treatment can be very intense and lay one out for a couple of days.

I researched a lot of different facilities around Sri Lanka and ended up on this one which seemed, from the outside, to be a good fit for me. While overall it was not near as fulfilling of an experience at my time in Ayurveda Health Home in Nepal or Dr Veena’s Ayurmantra in India, it was a learning experience.

“darling, i’am off to a rejuvenating Pachakarma treatment, see you in a two weeks”

Grounds / Facilities: Of the four different (at the time) Ayurveda facilities at which I received treatment, this one was definitely the most fancy and spa-like.

oh hi buddha

There was a pool (which frankly I was really never able to use but that’s cool), lounge chairs, beautifully manicured gardens with flowers in abundance, and overall the facility was very splendid, filled with interesting antiques, and the patient rooms were like a very nice hotel rooms, even with a private patio area for sitting and resting.

the grounds were immaculate and yes sometimes peacocks

Treatments / Schedule: The treatments were performed in a variety of traditional style huts, which were quite functional as well as charming. Each day, I was issued a fresh sarong and shirt and hat as the treatments are very oily. Additionally, I was given a basket of tiny disposable underwear to wear during the treatments.

Most days, I would have a short consultation with either the senior doctor (a gentleman who was very busy and often/mostly offsite) or a junior doctor (a young lady who was clearly still learning and mostly observing but very kindly).

Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
Continue reading Healing Ramble: Peacock Ayurveda Garden ~ Dikwella, Sri Lanka, 2018

Healing Ramble: Chronic Dude, logistical notes about “how to deal with traveling”

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction” video for context on this series.

(also riffs already from Thailand, India etc + tips about pros/cons and how-to logistics coming…)

Notes & Travel Tactics / summary

  • Comfort Kit and crash kit
  • Flight time: afternoon or energy time (no early or late night)
  • Airport hotels with bathtub for pre and post flight … wheel right to checkin
  • One place and be part of community 
  • Postcard and scrapbooks along the way … send home by Post offices
  • Playlists
  • Stretches – aisle seat
  • Massage
  • Coconut water/hydration
  • Wheelchair service
  • Block out airport stimulation (blue specs, ear plugs… )
  • Break it up / short hops, stay over
  • Medication CBD/RSO (but don’t take it with you!)
  • First on, Last off
  • Pack extra light, easy schlepp, buy stuff if needed and ditch it)
  • Travel uniform (slippers, compression socks, track suit, slip on shoes
  • Pick the right place
  • Places to get medical help: Thai, India, seems weird but… 
  • Confidence
  • Better than home w/ reruns
  • What are yours? 

Tips and Topics:

  • Crash Mode
  • Triggers (list, notice)
  • Warning signs eyes extremities, foggy, stutter
  • Get to safe place to regroup 
  • Quiet
  • Lights unscrew
  • Sound & batteries
  • Kids
  • Warm and fresh air
  • Electric /weighted blankets
  • Hydration coconut water
  • Magnesium etc. 
  • Soup
  • eyes/ears
  • Bath 
  • Candles
  • Epson/Magnesium/THC Salt
  • No interruption
  • Music/med
  • Reduce ? and sadness? 
  • Slow Docu films
  • Art Postcard therapy
  • Recover – ravenous … no junk!
  • Magnesium is handy
  • Cold bandanas around neck and/or temple
  • Moulded ear plugs
  • Comfy eye mask
  • Perfect pyjamas
Continue reading Healing Ramble: Chronic Dude, logistical notes about “how to deal with traveling”

Diary: May 5月, Beguiled (& rather) Bewildered

Oh bye May

Spinning past another month, we’re at the 31st and I’m waiting to try out a new Ayurveda clinic here in dear Okayama. So a few annotations:

Guess it ain’t no secret that I’ve had a hard time bouncing up this month/year, however in the midst of it all I’m out of bed *almost* every day and doing a few things around the house even if it’s just dishes, laundry, compost, making tea and rice. Some days I do a few more things, for example:

This month we had a surprise overseas visitor and we went together to one of the inland sea islands as well as enjoying food & items together – and it was a joy to share my “new life” with a friend from my before times.

I’ve done a few sessions of sorting around in the kura barn and, going through bins of artifacts and taking from “stuff in a bin” to curated collections in binders with labels and themes. It’s a task requiring equal parts organizational theory, temporary nostalgia, celebrating past and imagining futures, specifically “what can I make with all these things to amplify what it means?” None of the items are by themselves significant for the collection of them all creates a tapestry of life. That sounds rather “grand” but in my mind, it’s the usual days in regular life that make life remarkable.

Coming on Two & looking like a young man already

Wonderful child Ichiro has battled through a couple of snotty noses, colds and fevers which sometimes pull him out of school due to “protocols“ but my goodness, the words are tumbling out of his mouth now, the balance is increasing, his awareness of where things go and how to do things is increasing on the regular and I am absolutely proud. I am trying to add to my skill set of how to “tug the reins“ a little bit without being a grumpy Papa and not buying into the fallacy of punishment, which perpetuates and hides problems and always requires escalation and this is proven – throughout forever – to be generally ineffective & mostly unwise.

My treasures and the penguins on a recent trip to Antarctica via Shimane

Darling wife Ryoko is studying for her “tree doctor” level up exam coming up later this year and has also continued work on her charcoal kilns and tidying up her tool shed a little bit for maximum organization efficiency. She’s also been doing some secret live streams while kiddo and I are in the bath and usually get sa couple piano songs out before Ichiro yelled out “bing bong Mama!” and we do our “Captain Ichiro, are you ready?” countdown to exit bath, dry up, lotion and pajamas, stories, cuddles and sleep.

For me, sleep is a struggle – i sleep long but shallow & unrefeshing/replenishing plus make up in fits and starts + dealing with a lot of neurological pain still along with the brain fog, confusion and general crippling fatigue. So, new plan is to change my periodic check ins/administrative visits from the “big city general” hospital to the University Hospital where they have specific departments investigating long-term chronic post-viral inflammation/immune system diseases relating to the current cee-one-nine virus which kinda dovetails into my situation with #MECFS. There is also a traditional Chinese medicine clinic on site i’ll endeavour to try in my quest for new approached for increasing my baseline.

Always have at least a dozen sleeping masks on hand… i mean on face

As I mentioned in a video (I should know that I’ve done a couple more dispatches in my “healing ramble” series if curious) this month was the awareness campaign month for my illness, as well as awareness month for mental health, Asia Pacific islanders, IBS/Crohn’s and other things (Cascadia Day!) which have impacted my life. These notable days – coupled with a few significant anniversaries: me becoming ill and memorial service / for my Mom & Creepers & Chums party; I guess added onto the emotional exhaustion of just being constantly zonked.

Celebrating Cascadia several years back and Evelyn Street, Lynn Valley, North Vancouver, unceded Cascadia bioregion

But hey, here I am talking about it!The important thing is, I have a wonderful family here and great friends around the world, food is delivered weekly, we plant seeds in the garden, postcards and packages come from time to time, I have enough books and records to keep me constantly amused and I’ve even done a bit of scrapbooking about our trip a couple months ago to Shimane.

Tip: send postcards to yourself

Yes, mentally I always feel like “I should be doing more” and I guess felt since was a little kid reading Tintin books that I was meant to be “out there in the world sparking revolutions” – so I remember to pause and think of all the things “accomplished” in the last three years since I came to Japan and all the things in my almost 52 years… So many countries, conversations, projects and so much more to come.

Adventures ahead, adventures behind, same same different different

I also continue to fiddle away at this “creative life archive” / when I run down and stuck in bed, I listen to audiobooks and longform podcast and sometimes tappity tappity on the pocket robot to assemble posts with pictures, musings, memories and what not. I love the feeling of hitting publish and thinking that someone might find a bit of inspiration or amusement.

Getting hot and humid so hoping in June we might have some beach days and also set up the yard for more playtime right here. Ichiro hits two on the 23rd so have an eye on a balance bike and maybe a visit to a zoo.

Always more, we’ve got all the time in the world.

A wonderful painting I came across: Martina Heiduczek
“Coffee and Friendship” / two of my favorite things :)

Healing Ramble: Tips for airports & traveling whilst chronically ill

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble Introduction” video for context on this series.

With respect and understanding that not everyone can do *this* – i have another riff about “why” to seek medical care or healing treatment elsewhere (not in US/Canada in this case). For now, use it if you need it, if not just pass along.

Tactics:

* Request wheelchair service well in advance and use it proudly – Besides getting you around the airport, you fast track through security and immigration lines / You are usually be first on and last off the plane, be patient

* Fly Tuesdays and Wednesdays mid-day, the airports are most mellow at this time (also tickets usually cheapest)

* Dark glasses and earplugs/noise canceling headphones for when you’re in the airport

* I use an aisle seat so easier to go to the back galley area and stretch if needed + restroom breaks without hassle when a sleeping passenger next to you

* Lavender oil, compression socks, eye mask and your most comfortable sweater for the flight, dress respectable to increase chance of upgrades (and because you are sharp like that)

* When flying far – for me anything longer than three or four hours – book a hotel in (or close by) the airport at the other end, in some cases you can get wheelchair ride to the hotel to crash out and recover. Bonus points to get one with a bathtub

* Check your bag, only take a small carry-on with comfort items, don’t try to be that “efficient business traveler” and / or save money with just a carry-on

* Turmeric tea/tincture & aspirin and water water water & coconut water & NO booze – Did I mention noise canceling headphones?

* Put on an audiobook or chill music… Keep the sensory stimulation low by not watching movies especially on the crappy seat back for the videos. For me, the fuzzy screens spin me out plus you see all the other anxiousness and activity going on

* Get a credit card which gives you access to airport lounges… go to the airport early, find a quiet corner and hydrate and snack with protein rich foods so when you’re on the plane, you’re not eating the crap or being interrupted… Plus when using wheelchair service, best to go well in advance as some airports have a limited staff performing this service

* When you board (using wheelchair you’ll probably be first on) introduce yourself to the flight attendants and mentioned that you may need extra water and make sure you are close to bathroom if you need a little sensory de-stimulation

Tip: Oh one more thing, seriously don’t try to do a lot of stuff when you travel, for me I go places to find bookstores and quiet coffee shops and simply be somewhere else.  Just because you are a “somewhere else” doesn’t mean you suddenly have a bunch of energy to go out and about and meet lots of people. Avoid restaurants at busy times as well (i.e. hit lunch after 1:30 get a table in a quiet corner) … for me this reduces sensory overload.

Note: Not all of these tips are applicable to everyone obviously but for me dealing with ME/Fibro find them to be critically handy. All for now, curious to hear your tips or any thoughts about the above.

Also this archive is laden with other riffs about healing elsewhere and taking baths in the Healing Ramble series.

Healing: nine years w/ #me

Nine years doesn’t sound like a long time, but wow, nine years is a really long time. Enough for everything to break and everything to change and everything to rebuild and everything everything

The days stack up in patterns, about the recursive cycles, remind the children, it’s all about the cycles.