Tag Archives: healing

Healing: Journals and a Postcard

sorry, i guess – no not at all

As I’m stumbling along on my “healing ramble” series (please watch the intro video for overview and disclaimers, not unusually, finding myself a little bit overwhelmed with all the artifacts, memories, items, even data, to share. So, rather than obsess over it just putting it all out there, even if it’s a bit redundant.

The next “real” dispatches from the series include my “tips for travelling with a chronic illness” (which is rather practical and logistical stuff), plus another entry from Sri Lanka, another from Nepal, a tough one from Pacifica California, more from other places i forgot and maybe I’ll even fill in the missing gaps from Adelaide Australia, Austin Texas, and crossing Canada looking for a home.

In the meanwhile here are the fronts of some notebooks and a postcard which allude to some of the above.

Continue reading Healing: Journals and a Postcard

Healing: Story of Dissanayake Ayurvedic Hospital ~ Galle, Sri Lanka

not really at the hospital but still captures the spirit of the scene

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction video for context on this series.

Importantly, this is not meant to be a travelogue or creative writing exercise, just laying out my experience as it came to me. I may include some links to other projects or creations that came out of this, maybe… I’m not there yet.

This entry, from is from Galle Sri Lanka, late 2017 and written in the weeks following. It’s now April 2022, i live in Japan, am stable if far from “normal”.  No comments, sympathy requested or accepted. Carry on. 

Dissanayake Ayurvedic Hospital
Dissanayake Ayurvedic Hospital: Sign

Background: Along my healing journey, I received treatment at Dissanayake Ayurvedic Hospital in Galle, Sri Lanka, a government-run, pay-what-you-can facility.

I attended this hospital for Ayurveda treatments for some weeks during Dec. 2017-Jan 2018 and was treated by a kind practitioner called Ruwan. I also met with a wise Doctor who recommended I do a longer in-patient Panchakarma program here, but… some life situations changed and i didn’t do the program. I saw the rooms and talked to the doctors and while it was very spartan and not cozy, the staff seemed to be very intent on their practice.

Dissanayake Ayurvedic Hospital: Lobby
Dissanayake Ayurvedic Hospital: Lobby

Routine: Mr. Prem dropped me off via his Tuk-tuk (he introduced me to the facility in the first place), i then went to a window to announce myself (to everyone’s great surprise!) and then sat in the waiting area. Mr. Ruwan would come back from lunch, i would strip down to underwear and lay down on a wooden table (covered with a vinyl sheet) in a shared room with folks coming and going for massage with loads and loads of oil.

Dissanayake Ayurvedic Hospital: Treatment room
Dissanayake Ayurvedic Hospital: Treatment room
Continue reading Healing: Story of Dissanayake Ayurvedic Hospital ~ Galle, Sri Lanka

Healing Ramble: Pros & cons of living or seeking treatment abroad with a chronic illness

Memo: Above comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction” video for context on this series.

Importantly, this is not meant to be a travelogue or creative writing exercise, just laying out my experience as it came to me. I may include some links to other projects or creations that came out of this, maybe… I’m not there yet.

This entry was in Pokhara, Nepal, early 2017, written as a letter to someone i met along the way facing health challenges of their own. I never heard back but whatever…

(finally) organized and published spring 2022 – i now live in Japan, am stable if far from “normal”.  No comments, sympathy requested or accepted. Carry on. Note: There’s another post with a review and brief introduction to Ayurveda Health Home as well. 

daveo

Dear [Redacted],

I’ll speak frankly and candidly from my own experience, all of us are different of course – for the record I am at an Ayurvedic clinic in Pokhara, Nepal.

Background:

a medical diagram of me

Like you, and most everyone else with a chronic complex medical conundrum, I’ve spent all the time since my “trigger event” seeking out various treatments.

From overmatched GP doctors, to the anticipation of finally getting into see a “specialist” and the disappointment crash following when they still have more answers than questions, spending everything you got to see various naturopaths, chiropractors, reiki practitioners, massage therapists, nutritionalists… with little to no long-term benefit, spending sleepless nights reading medical abstracts & journals as though you understand them, seriously considering going in significant debt to go to a “fancy famous” hospital, putting up with family and “friends” advice (occasionally well-meaning) but always useless and often completely disrespectful, using up every bit of energy reserves on a daily basis just to get through the day and hopefully feel some vague sense of satisfaction or accomplishment when really you’re just spinning, seeing the stress it causes on lovers and partners who try their best to understand but crack under the pressure from time to time, and acknowledging your own mental well being — which starts to fragment from exhaustion, frustration and so many (often professional) people telling you that it’s “all in your head”.

I made a penciled flowchart of my various options before I headed out this last time, ergo:

(very frank) life options

Shall I do just what the Western doctors and insurance companies want me to do hide myself in a rainy apartment with old folks down the hall filling the lobby with smell of soup?

Go down in flames with late nights of parties and decadence pushing myself to the very limits knowing that it doesn’t really matter if I wake up tomorrow (I’m just not that self-destructive)?

Or, beg borrow and steal to see the litany of well-meaning but wholly ineffective naturopaths, chiropractors, Reiki practitioners, nutritionists blah blah blah? (I have largely done this and have fallen deeply into debt as a result)

Or do I continue this sorta strange wandering life of seeking healing in foreign lands while playing the “cat and mouse” game with the insurance thugs who wish to control me? I guess this choice won for the time being so i’ll break down the problems in the categories:

  • Financial (the cost of simply living coupled with the cost of getting treatment)
  • Treatment (access to reliable and useful services when you need them)
  • Climate (some of us do better and different weather, as well the “political” and social stress of environment)
  • Community (the first year or so it can seem that you have a support network but as years go on, this breaks down and begins to vanish having a net negative affect)
Global Brigadoon Index ™

My experience:

My “western diagnosis” is fibromyalgia and chronic fatigue syndrome/M.E. This all started in May 2013 so I’m coming up on four years. My diagnoses usually affects women and there is support groups etc. have been primarily women, bless their hearts.

Continue reading Healing Ramble: Pros & cons of living or seeking treatment abroad with a chronic illness

Healing: Ayurveda Health Home, introduction + review ~ Pokhara, Nepal

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction” video for context on this series.

(also riffs already from Thailand, India etc + tips about pros/cons and how-to logistics coming…)
welcome gates in Pokhara, Nepal (note they have a few facilities in Nepal

Visits to a few wonderful, unique, intelligent clinic/hospitals in India, Nepal and Sri Lanka played the most critical role in bringing me “back to life” from MECFS – no, i’m not healed but i manage. Anyhow…

In this dispatch, i’ll introduce Ayurveda Health Home in Nepal – they operate clinics in Kathmandu and Pokhara where I did my panchakarma 3 week treatment cycle. [Update: now another facility] and are a German-Nepal partnership company and bring the best of both cultures into the operation.

me and the esteemed Dr. Rishi (rip) so much goodness – note my custom hemp trouser, Topi hat and Thai-made custom shirt

The facilities were fantastic – simple and sincere and functional, the staff was next level skilled & diligent, and the skill of the key medical officers – led by the brilliant, international reknowned Dr Rishi & my lead (the coolest and kindest) Dr. Rumee – empathetic, knowledgable & superb. 

view from my darling room in Pokhara
Continue reading Healing: Ayurveda Health Home, introduction + review ~ Pokhara, Nepal

Diary: Leaving India ~ rapidly, in a fog (Nov. 2016)

Nov. 29, 2016, 9:04 AM, Auroville, Tamil Nadu, India – i ordered this coffee and turned on phone…

Note: transcribed with light editing from my scribbled journal made in “real time” as always more to say but this is what is there is – read between lines, follow rabbit holes to fill in the blanks if curious. (will add more about Auroville at some point and more about dear Mom’s passing including my letters to her and obituary within)

Afterward: includes notes from the interlude

Auroville, Tamil Nadu, India – 9:04 AM, Nov. 29, 2016

After a visit to Townhall and Mathrimandir, near the visitor centre, hot coffee in small brass cup, turn on the pocket robot and (oddly) a barrage of messages on all channels, so many – I am confused (hithero ignored) – then email/every-messaging-channel – I read the first line, baffled but know something is terrible! so try to call brother Anders.

the day before, visiting golden dome dedicated to motherly love #sigh

Calls (over dodgy internet) are made and calls are dropped again and again after 3 words – finally, i hear “what” and say “Chennai airport, open the envelope, four hours” fast – go! {The envelope in Vegas contains access to Dashlane app which has all passwords credit cards and passport and a friend who is so good and helpful from home HQ.}

My location wasn’t on itinerary and no matter, no coverage anyhow. I was on my way to a post office to mail a dossier to Nick Bantock and then to the golden temple of meditation and somehow it all happened.

accomms in Auroville, met folks from many countries, enjoyed activities after a confusing start. i could *stay* here – i have skills

Hustle back to “Joy Community House” breathlessly explain. Return card to townhall. (Kind ladies hug me and give me “rescue remedy” in a glass bottle. I was just getting familiar and how do you explain this to someone? How do we humans know how to react. Grateful for wise ladies).

Bundle gear from cute room
Quick shower ("I will need this," he says from experience)
Call a taxi quicker
ring a taxi, try to make my situation understood, i look at my shoes

Fast to Chennai

Buy a bag of fruit from roadside, gogo man! eat bananas.

Shaking queasy, drink two coconuts en route

3 anna half hours weaving between cows

Coming the busses directly ahead! Fck Honk!

Roadhouses and truck stops and urine stained curbs and fields

Smoke two beedies each stop

Quick quick!

– dave in taxi

At airport, taxi drivers lounge around their classic sleds – i want to stay and ask them to take me far away. I don’t care to leave *at all*.

not my taxi driver, but other taxi drivers
Continue reading Diary: Leaving India ~ rapidly, in a fog (Nov. 2016)

Diary: DIY Firestarters, Vinegar, side cart… (+ usual supplements and hospital)

What follows are simply sundry odds and ends from mostly late Nov, (bit of early Dec). 2021 with an emphasis i suppose on a few DIY projects as we continue to settle into our reno’d home, doing loads lil tasks and looking forward to each day. Pardon, brevity and repetition, this is me chronicling the usual days of a poet-storymaker+house-husband+oldish-papa, doing my best.

First off… Making fire starters in the car port with paper egg crates, sawdust & paraffin in a sorta double boiler on a canister stove.

One of these in the woodstove with no other paper or whatever and a single light and you are good to go. Works so well (though next time use soy wax and also recommended by others: dryer lint).

Also from the DIY file is persimmon and ume vinegar, freshly decanted / will filter in bottle in a few more weeks. Such natural macrobiotic goodness.

Flashback to decanting vinegar:

“& voila / persimmon & ume vinegar decanted >> In a couple weeks will filter & bottle (bottled some ume cordial & syrup while at it)

Filtering persimmon vinegar while listening to @TBeanpod / Seems oddly appropriate and glad you were brave enough for IKEA because no way I’m going there :-) if it can’t be delivered or bought at the recycle shop, it’s just off the list”

Another quick DIY project… A little rolling cart for the kitchen for fruit and serving tea and drinks and what not. Ordered used, delivered next day, total about ¥3500 ($30 USD ish). Casters on everything!

Next up, some hemp canvas panels to go over the drafty doors that were skipped over in the renovation. We hung hooks and cut bamboo poles/rods/.

We eventually need a couple of curtains for some view windows but want to get those special made by the noren makers of Katsuyama. 

Memo: I just folded the laundry (yup again) and now onto dishes. Thank you for your support of my creative projects of late.

Related: Made video with books which arrived by post incl about Hunter S Thompson + Neal Cassady 50th anni (sent / signed by daughter with postcard photographs by Carolyn), and a dude in Scarborough who published letters to friends while traveling the world (sound familiar?)

Lots of videos coming out, don’t expect anyone to watch *all* but if you’re really smart, you will :-) #notaplug

Super fun/strange, got a call on not-so-secret-but-no-one-ever-uses Japan VoIP number *and* it was a wrong number asking for Etsuko-san. Replied “I’m just a regular guy named Dave”. Anyway, was my excitement while organizing supplements for next fortnight & watching hockey.

Put in another big order with @iHerb / A company which continues to amaze me with their incredibly fast (free!) delivery of unique items – although they’re definitely having some “out of stock” issues

PS Got the laundry folded (yeah i know i always say this), nursing a cold so I think going to a special event tonight is going to be off the list… was first time to go out in well, forever – however have persimmon vinegar to bottle and/or start on New Year’s cards + vids to edit > tmrw online meditation “retreat”.

(Another day) gotta get ready to go to big city hospital for a bunch of scans and tests and what not #mecfs …

Thanks for hanging out while *sorta nervously* get ready by sending out little dispatches. Wishing best days to everyone wherever & whoever you are. be your own revolution

Lost in translation and somewhat translucent but back home in bed

File under “things I love”: this new heavy duty, cast iron, small footprint, front loading, side cleaning woodstove in our cottage in provincial Japan. Cozy and safe. With an arborist wife, always have a stash of heavy hardwood to burn – hot & slow.

Stash the ash in the compost and brought in a new little stack of wood.

Anyway, getting towards the end of the year so rocking out a little projects to finish up strong. This afternoon is another doctors appointment, hopefully the last for the year.

Tomorrow is some picture framing festival and some Santa Claus voice recording, the following day the Grannys from the Silver Center are coming to clean. 

Good morning and good night from our home , Tsuchida Cottage, Okayama, Japan.

Healing: Attempting amusement at the hospital

Attempted amusement while killing time at (yet another) hospital visit.

Nothing to see except for van Gogh tie – which matches wife’s outfit (and the usual #Fluevogs for a little bit more swagger while dealing with all of this) #mecfs #pwme / Rough patch but alive (& loved).

Back home in bed in cool dark room, medicating, meditating & trying not to spiral.

Hard cause so much life out there + so many things want to do but remind myself “patience and time are my allies” (also audiobooks, podcasts & lavender eyemasks) / Should be easier but…

Anyway, just keeping track of all this so when I’m older and wiser and healthier I can remember the steps along the journey. Carry-on.

Healing: On the bus towards treatment

So tired, all the time + cant sleep

Waiting for a bus, bound for seitai treatment (now with sunny day scarf & a Mavili cap) / tough MECFS stretch of late, trying to shake it loose.

The seitai treatment is a really good reset for me – but it does sometimes shake loose some long lingering conundrums.

I mean yeah, I’m in a rough patch but I’m doing “things “*every day* where previously I would be in bed for weeks at a time. Anyhow, the doctor is a great dude, has the best record player I’ve ever seen and a massive collection of classical music. That said, times like this I really miss a 90 minute Bali spa massage.

Also thinking about Ayurveda in Nepal, the wonder of helping others, & Cmdr in Diego Garcia. We talked recently about checking in for a three week Panchakarma session in Pokhara and then heading back to Ghandruk, Annapurna District.

My favorite close-by restaurant to the clinic (Grilmori) has moved (or something) and i ended up at a rather unsatisfying hectic lunch experience at a coffee shop – did not document.

But I do have a photo of a sandwich at the hospital that should go on another post but well, it’s not like this is “Important” or anything. It’s a picture of a sandwich and a coffee

So… Back on bus, on way home #wipedout (saw a dead bird on a newspaper)

As usual, just annotating for future reference. Move along or sit down.

Healing: Laundry & Unrest

Lots of action and activities and errands last Monday, makes the heart and head happy but the body can’t quite stay/catch up so went into #mecfs “crash mode” on tuesday – though I’ve stumbled through this for so many years now, it never gets easier / such pain and unrest and confusion – kinda like epic jet lag plus hangover plus flu and a kick in the head/gut/kneecap all at the same time #NonScientificAnalysis

Blanket note: Master Artist Bill Reid design / collab with canadian national history museum / wedding gift from pal Kemp Edmonds.

Slowly coming back to life on Wednesday – enough to wash the dishes and fold the laundry. I really enjoy folding laundry except for fitted sheets. I would investigate the proper technique but I really don’t need another obsession 🙂

Noting I am writing this annotation on Canada’s first national Day of truth and reconciliation (on which I made appropriate donations to express my solidarity in a practical manner as well as lighting incense or metaphysical support)

Tomorrow is usual check-in with the neurologist at the city hospital.

Memo: With my weird illness (though hardly *uncommon*) there’s no usual treatment path but the check-ins keeps me in the system as well as acquiring minor medication to help smooth out the edges (ditched all the heavy duty medication some years ago – more pain but more brain).

PS with the onset of “long-haul C 19” illness it’s suddenly given a lot more awareness, research, science towards my nuanced chronic viral infection which presents some of the similar symptoms

Anyhow, just wanted to share the simple pleasure of folded laundry. No big deal, I roll-on, just floating it out there in solidarity with other folks who are primarily homebodies due to physical constraints which can feel a little challenging as people are getting out and about a bit more

Secret Lunch Café (and remembering friends on a path)

1 choice so you don’t hafta order, easy – comes with a salad and water

So after medical treatment yesterday, snuck into secret cafe which had 1 patron (me) & offer only 1 kind of curry per day and every time is magnificent (as is the boss’ hair) *and* this time offered coffee and free gelato after cause i’m a big shot here in Okayama.

coffee and gelato (not pictured, notebook and pen)

I shan’t tell you the name :) Unless asked.

my own private hide out, with jazz, calm lights and very tidy

After, i wandered (got confused looking for the optometrist) and remembered my pals being here for the wedding and we sat on this bench and drank from this fountain (such luxury). I sat and felt grateful for friends.

Oh dear Okayama.