Tag Archives: illness

Healing Journey: Update, Summer 2018

Thunderstorms in the Crash Years – Postcard #75

Pod cover - postcards from gravelly beach - thunderstorms in crash years

Amidst a thunderstorm at 4AM in Chiang Mai, Dave discusses – with excessive frankness and emotion – various medical conundrums (Fibromyalgia and CFS-ME) and details the physical feelings of “crash mode” as well as the mental strain in dealing with self de-identification and inter-personal relationships, confusion in seeking help, and various alternative treatments. No sympathy or advice requested.

Always be kind for: Thunder in the Crash Years – Postcard #75
(75MB, 37:09, mp3, stereo)

Continue reading Thunderstorms in the Crash Years – Postcard #75

“Unrest” Documentary about CFS-ME

Dave gazes at Rodin's interpretation of the Gates of Hell from Dante's Inferno
Dave gazes at Rodin’s interpretation of the Gates of Hell from Dante’s Inferno

Finally up worked nerve/courage to watch @unrestfilm – Cried & laughed + noted im not alone. So much familiar: documenting, crashing, trying *everything*, endless Drs, so much confusion/suspicion/loss. 5 years along #cfsme & #fibro. Was invincible dynamite before.

Also, was funny in the movie to see her obsessing about mold and putting up a tent (I did this), making bone broth (which I did obsessively and one of my former charges now has a bone broth company), all the supplements (which I spent so much money on!), and all the “superfood“ smoothies/drinks/concoctions… Oh, and also all the Chinese herbal remedies cooked up in a big pot making the whole house smell crazy weird.

PS Unrest the film is on Netflix, iTunes and other places.

Dog days of healing…

Sure don’t enjoy talking about, or even acknowledging cause feels like i’m conceding power & spreading sadness, but… fck me, the fibro + me/cfs etc really got me achey bleary today. I’ll be alright, just saying here rather than hollering out-loud and weirding folks out.

#puppy #sadeyes #cuddles

Medications versus Gurus

Muscles atrophy
And nerve endings are tingling
Do you attempt to ignore,
When facing reality?

Pain owns you
No matter your positivity
Medications and Gurus
Are temporary
And you are left alone

Parents gone, love faded, friends confused, and all unintendedly wrong

Return’d

you ask me why i want to return
you say those exact words
you know it’s different now
and not sure it works

yeah i understand the notion
my old world’s moved on
like the cast of a tv sitcom
changing colonels for captains

the answer is simple
if you’d pause for empathy
the work or tribes
not the point

it’s what return means for
coming back i’ll tell you
simply indicates i’m stronger
healed enough to leave home

can ride the pony longer
almost long 4 years now
sure wasn’t perfect before
stuck in a deep foggy haze

i just need something more
more than doctors appointments
and bus rides, injections and pills
endured too many therapists and quackery

mistaken strangers for best friends
i’ve lost too much than i can count
parents, loves and pals
self-esteem and a paycheque

though to you it looks so easy

Declaration: upon waking up

I wrote this declaration upon waking up…

This past summer, after literally losing my mind, I decided to step into the abyss… Bravely, intrepidly and without compromise.

Holed up at a mountain cabin while chaos swirled around my lives, I listened to the message from records from decades ago, I hot boxed my beloved bus were so many happy memories happened, I reunited with charming characters from my past and even better, met their children who are adults (moreso than me anyway), then with a solid head of mushrooms and MDMA, this plan came to me.

On a psychedelic carpet, i clicked enough buttons on the Internet, to purchase an abstract variety of plane tickets to send me a round like a manic boardgame in search of a new flavour of truth and reality.

Salt Lake to Las Vegas to Pacifica to Chaing Mai and now to this anonymous city where I’m practically the only foreigner in a city mourning the death of their beloved King, I’m finding comfort and solace and healing.

In scant days, I will leave again into uncharted territory, beyond what science and reason says is capable of this haggard body but I refuse to except anything but finding some sense of joy.

I can live with pain I accept, but I cannot accept living without my brain and without my heart and soul. I am born to give, exist to share, and I am empty without those.

Without a safety net, without and emergency escape route, without language skills, without the strength to punch my way out of a wet paper bag, I have built a tiny universe and painted the walls just the colour I chose.

Who will return to the West Coast on December 6? what will I look like? Who will I be? I am indifferent to all of these questions as the destination is simply a byproduct of the journey.

The journey is me and I am the journey. Brick by brick, I will gently apply the mortar to rebuild, to renew, to replenish and regenerate from the very mitochondrial cells outwards.

What ever the result, it will be me.

Old vs New (notes re: self)

Renegade adventurer v. Eccentric gentleman  

Remote and natural v. Walkable villages  

Ragged beards v. Straight razor shaves and mustache  

Hiking shorts and rock t-s v. Tailored suits and fitted shirts  

Free conference pens v. Disposable fountain pens  

Craft beer v. Water and tea  

Fat doobies v. Unfiltered cigarillos  

Freeverse v. Lyrics

DIY repairs v. Takeout mending  

Self-service v. Delegate  

Wash n wear v. Laundry service  

Late night rock v. Early acoustic  

Take away street food v. Long patio lunches  

Midnight movies v. B&W documentaries / matinées

Of logistics and papers of health conundrums…


Hey Pals, remember a week or so ago when I was feeling so blue and grousing about all this paperwork and the anxiety and the stress it causes…?

Well after a mighty effort yesterday, everything is packaged into four envelopes to mail to various government offices, doctors, insurance companies and so on.

But I’ll tell you, it was no fun emotionally or mentally as i listed all the different doctors, treatments, modalities and so on for the past three years. And the net result is of no benefit to me as they simply take out the Canada pension plan disability pymt from my private insurance disability payment (Which, don’t get me wrong I’m incredibly grateful to receive otherwise I would be living in a tarpaper shack by now).

Telling you this as a “victory lap” since I didn’t go out to celebrate with pints and joints till 4:20 AM (instead took a long hot bath with Japanese bath salts, three kinds of soap and some nice tunes in a dark bathroom) 

Plus telling you this so I can let you know I truly appreciate each of you for acknowledging me when I’m losing my shit, offering to help, letting me know that you care and that I’m not invisible.

I know I’m not a real peach to be around these days and as much as I try to be positive and optimistic, there is no mental strength I have to stop wondering “what if?”…

I’ve gotten closer to acceptance in that I accept that I will never be the guy I used to be, and progress will be slow but there is more out there for me to do. 

My revolutions are now much more gentle and usually done from the comfort of a bed.

But truly, thanks, I often regret sharing this shit with all of you since everyone has lives and responsibilities and expectations and problems but, it’s what I know how to do.

Did I mention thanks and that I adore you?

I’ll add a photo of something as people seem to enjoy those :-) and now that I’m done, perhaps I’ll share a new batch of music for your ears soon to overwhelm all the negativity, violence and politics and religion and nonsense in the world.

Occasionally, Dave

Riding bus bound for appt…

Riding bus bound for appt w/ holistic nutritionalist to learn more about anti-inflam food & thwarting leaky gut 

#healing #Grateful #sickofit