Tag Archives: me-cfs

Trying / note to self (so far, so fast)

Trying (en route to maintenance)

I hafta remember {times like this} ive come so far, rather fast – so far, so fast! >> after falling down down down so so deep.

5.2013 til now = 3 life epochs (or more).

Recap: alive, creative, loved, tired {+ sometimes the syndrome is so fcking tough}

Grateful to pals for sparking me up with kind words across time zones when i could barely put on trousers and get out the door with wallet, keys & bus card for a wee bit of medical maintenance.

Phitsanulok Field notes: coffee, noodles, tuk-tuks, kings etc

An omnibus round-up for lousy photos of logistical considerations and personal memories in Phitsanulok, Thailand. Please watch the “Healing Ramble, introduction” video for context on this series.

you knew there would be a post box, yup, Hip Inn had several – my kind of place!

Finding Rest & Calm

On my visits to Phitsanulok (aside from a few transitions and late night arrivals), i stayed at Hip Inn and Coffee because they have typewriters and cappuccinos and all manner of quirky decor (Vespas, VWs)…

clean, quirky, low-key, convenient – love this place (3+ visits so far)

It’s not in the “thick of town”, a little outside but still walkable in a pinch to market and hospital. Nearby was a larger hotel so could get a tuk-tuk or taxi when needed. 

all-time slobber champion

Plus this dog lives at Hip Inn and good for a pet after a tough day.

Here’s my no-longer-secret -but-otherwise-public review of Hip Inn  at: 39/5 Sanambin Rd, Tambon Nai Mueang, Amphoe Mueang Phitsanulok, Chang Wat Phitsanulok 65000, Thailand

Could Live Here for a Month

i know it was my room because there was a typewriter at hand

Continue reading Phitsanulok Field notes: coffee, noodles, tuk-tuks, kings etc

Healing: Story of Kamalasom Massage ~ Phitsanulok, Thailand

on the massage mat, so exhausted and disheartened by life but… doing it

What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff.  Please watch the “Healing Ramble, introduction” video for context on this series.

Importantly, this is not meant to be a travelogue or creative writing exercise, just laying out my experience as it came to me. I may include some links to other projects or creations that came out of this, maybe… I’m not there yet.

This entry, from Phitsanulok, Thailand over 4 extended visits in 2016-18. It’s now June 2021, i live in Japan, am stable if far from “normal”.  No comments, sympathy requested or accepted. Carry on.

kind ladies at the massage clinic on one of my visits (looking better here)

On my healing journey, i was introduced to Kamalasom Traditional Thai massage ศูนย์ส่งเสริมสุขภาพแผนไทย กมลาศรม (สาธารณสุขจังหวัดพิษณุโลก) clinic in Phitsanulok, Thailand after the magical Mrs. Athaya made arrangements.  Since Oct. 2016, so far i have spent 4 extended treatment sessions at this facility.

always catching a “good bye” photo (including me in my disposable clothes)

This is NOT TO BE confused with ubiquitous “tourist massage” or the abundant s3xy massages, this is traditional “royal court massage and i’ll tell ya, its not gentle, relaxing or delicate – but Oh so great!

I’ll explain how the routine goes: Usually,… first starts with a blood pressure and pulse rate check (keep in mind all this happens in Thai so i just play along with smiles and they are all so nice to me), and brief consult (again, in limited common language).

starts with blood pressure test and whatnot

Then, after changing from street clothes to sorta pyjamas/shorts, i receive 1-1/2 hours of Thai “Royal Court” massage in which all my muscles, joints, ligaments etc are stretched and bent to the very outer limits with elbows, knees, feet as well as hands involved. Continue reading Healing: Story of Kamalasom Massage ~ Phitsanulok, Thailand

Healing Journal: 7 years, so much between

As it goes, a photo from 2013 popped into rotation today: me as usual with beard, specs and art in the background so… I snapped another quick similar pose and noted that despite the hard miles of these last seven years – all the hospitals, all the treatments, all the medication, all the stopping medications, all the loss (name it), so many dear ones passing, at least four concussion level falls & crashes (Vancouver, Adelaide, Pacifica, Chiang Mai), so much being gone gone gone lost (not wanting to be found), finding myself in harms way intentionally and otherwise, some terrible decisions, some great decisions, looking anywhere for home, not wanting to be home, forgetting about home – so many > too many places – and then somehow found – with all of “that”, I don’t look all that worse for wear.

The Buddha is quoted as saying, “to gain anything, first you must lose everything” I did and then found out that Buddha never said that – (dang *experts*). Regardless, some of what I lost, I picked back up, other parts I left behind.

Seven years which felt like 17, and i’m only scratched & dented gently & mostly on the inside. It’s good for poetry if nothing else.

70 more to go. Still. At least.

PS Noting that there was a lot of damage and a lot less smiling in “the between years”. Might share at some point, but just came here to say thanks for all your kind words and support. Almost convinced I’m worth it 🙂

Jamaica Re-entry: notes about illness, healing (and related dispatches)

healing: jamaica reentry

Just over a week ago, i returned from Jamaica for the 3rd time. This trip’s purpose wasn’t the fun-loving, adventuring, goodtimes i usually seek but rather to heal up and gain some vigour and physical and mental power to continue my healing journey.

In just over 6 months since i was diagnosed, my life’s routine changed significantly. And, as a social and tribal/community-minded person, the self/syndrome-sparked isolation was required as i tried to learn about “what just happened to me” … along with a litany of medial appointments, combined to really remove me from a sense of control, flow and calm.

I was accompanied on this Jamaican trip by 2 trusted co-conspiritors plus knew i was going to a familiar place where people genuinely care for me and want to see me at my former full-power mode of near invincibility and tireless creativity.

Then, 36 hours before leaving, i took a quick Vespa ride to pick up a couple little gifts and ended up in VGH Emergency Room after wiping out and crashing up my face, arm, leg the Vespa etc. Somehow the hospital felt familiar though i’d never visited before – i suppose so many hospital visits in the past few months makes the beige chaos of a hospital common to me.

Also that day, my phone was cut off so i wandered out of the hospital confused and aching. Finally made the stoopid decision to ride the Vespa home (both the machine and the rider were in no condition to do so).

Anyhow, there we were in Jamaica – my pals out swimming and exploring while i was convalescing with icepacks and my assigned program of pills. I don’t enjoy this process.

After a week of waking up late in the day, grumpy, frustrated and blue, really blue, i tried to rally and get out in the world. I tried to roll with my pals (both foreign and domestic) but was just kidding myself. My “energy envelope” lacked the capacity for anything but chilling – otherwise the symptoms of weak, weary, confused, achey, grumpy, depressed all creep in.

I dislike all of this. But I tried to meditate my way out of it, distract myself with filling my handmade notebooks with schemes and plans, sipping a bit more rum and other potions, teas and trying to eat something. Also, my meds were running out and required a trip to a clinic, a Dr visit and pills delivered by a resourceful cabbie called Pablo. All this was to much.

The meds running out made me confused and grumpy but occasionally, i could feel my “real Dave brain” wanting to talk with strangers, build community, create conversations, find musicians. I could feel the ideas, just not how to execute them. That part simply turned to mush.

During all this healing and mental transition, i realized more time was needed in Jamaica to ensure i go home feeling better than before. Not perfect, just a little bit better. I rode to the airport with passport and ticket but hugged beloveds goodbye and returned to the cabin to try to find my equilibrium.

With the help of a Rasta called Chubby and my personal assistant/housekeeper Patsy, i started on a regimen of fresh fruit, banana/coconut porridge, fish tea/soup and a powerful tea made from herbs including (colloquial names): Strongback, Guinea Hen, Sarsaparilla, Nuni, moringa, ram goat regular, irish moss and more. It was magic. I spent my days meditating and sharing stories in Chubby’s Rasta hut (African inspired stick hexagon with a hardwood fire going most all the time).

I knew re-entry could be tough in my fragile mental state so i steeled myself for the adjustments but, upon return was hit with a major dose of hassle between paperwork and medical appointments, and some potentially distressing health news about my Dad, I’m doing all i can to stay out of the blues.

Therapists, meditation, listening records and trying to make my life as simple as possible despite all these projects i dream and yearn to do (i have books to write yo!). I am trying to be social and trying to take care of me – and doing a kinda C+ job at either.

For reference and the record – and mostly for my own reminder –  what follows are four wee videos which track my mental and physical healing in Jamaica.

From getting up out of my bed trying to feel some inspiration, to regrouping in a hammock discussing herbs and soccer, to a rapid recap of progress in Chubby’s Rasta hut, and a message to future-self reminding me to remember how to live.

Here’s the first with the other three to follow right behind. I’ve shared and i’m tired and a little bit scared.

Videos >>

Healing Journey 3: Annotations from a Jamaican Hammock

Healing Journey 4: Feeling a Wee Bit Blue in Little Bay

Healing Journey 6: Message to Future Self from Jamaica