Tag Archives: chronic fatigue syndrome

“Thunderstorms in the Crash Years” – audio story about #MECFS & #Fibro

Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
 

Amidst a thunderstorm at 4AM on a balcony in Chiang Mai, Dave discusses – with excessive frankness and emotion – various medical conundrums (Fibromyalgia and CFS-ME) and details the physical feelings of “crash mode” as well as the mental strain in dealing with self de-identification and inter-personal relationships, confusion in seeking help, and various alternative treatments.

audio story about #MECFS & #Fibro, just click play below

Always be kind for: Thunder in the Crash Years – Postcard #75 (75MB, 37:09, mp3, stereo)

No sympathy or advice requested.

(un-licensed but fairish-use) music by:

  • Tegan and Sara “Wake Up Exhausted” (demo)
  • Billy Bragg “Must I Paint you a Picture” (extended)
  • New Pornographers “The Crash Years” and “Adventures in Solitude” (studio)
 

 

Thunderstorms in the Crash Years – Postcard #75

 

Amidst a thunderstorm at 4AM on a balcony in Chiang Mai, Dave discusses – with excessive frankness and emotion – various medical conundrums (Fibromyalgia and CFS-ME) and details the physical feelings of “crash mode” as well as the mental strain in dealing with self de-identification and inter-personal relationships, confusion in seeking help, and various alternative treatments.

No sympathy or advice requested.

Always be kind for: Thunder in the Crash Years – Postcard #75 (75MB, 37:09, mp3, stereo)

Continue reading Thunderstorms in the Crash Years – Postcard #75

Notes about erstwhile healing cycles and conundrums

It’s a super fucked up (and even vicious) cycle.

It goes like this:

  • Start feeling a wee bit better
  • Get vaguely happy & optimistic
  • Begin scheduling coffee dates, chitchats and thinking about future plans
  • Go for walks, write postcards, make scrapbooks, meditate, sign up for tai chi class etc.
  • Somehow, amongst all these good healthy lifestyle growing healing activities, you managed to do too much and crash
  • Spin & struggle for days – which often turn into weeks – trying to regain some sense of equilibrium and strength and brainpower
  • This is difficult so you spend more time meditating, taking hot baths, buying more supplements, more medical appointments, more reading literature about these conditions….
  • Then you feel lousy because you’ve had to cancel appointment, haven’t contributed anything meaningful to the human conversation for days, haven’t mail postcards, I haven’t written a damn poem or a story or crafted nothing…
  • Wonder what it is like to sleep… Consider extreme measures… Realize you’ve tried all extreme measures… Flip and flop and twist and turn and get up and walk around and stretch and all of a sudden it’s 5 AM and you haven’t slept again
  • Have a long cry, a long hot bath and try to shake out the negativity which comes from not “doing anything” because you remember that doing isn’t important it’s “being” but still you’re frustrated because just getting out of the apartment takes a Herculean effort
  • Wonder what’s next and hope folks are patient with the shit you’re going through, question your own relevancy moving forward.

When I’m feeling blue, I try to lively up…

When I’m feeling blue, I try to lively up by spreading a barrage of happy comments around the Internet. I think of these as tasty morsels of digital dim sum.

With my life stuck in low gear, I revel in the successes and creations of my friends.

With low gear, I should be able to climb mountains (metaphorically of course) but so far, I haven’t even made it out of bed.

Also, when I’m blue… I daydream of idyllic road trips in a bus, growing my beard and singing songs with friends.

#Grateful #chilling #Healing #friends