Tag Archives: chronic fatigue

Healing: Story of a bath in Chiang Mai, Thailand

a view of bathtub at Rainforest Boutique hotel in Chiang Mai, Thailand – this time phot’d with a slice of papaya

What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction” video for context on this series.

Chiang Mai, Thailand (3 visits various times between 2016-2018)

Along my healing journey, I’ve traveled to various countries seeking treatment and relief. In my condition with fibromyalgia and chronic fatigue syndrome / myalgic encephalomyelitis, my energy is very low and I’m easily overwhelmed by the lights, sounds, commotion… and then i crash and am stuck in bed with pain and delirious exhaustion (which depletes neuro-transmitters leading to mood ummm swings).

me, bathmode

All of these conundrums make travel by conventional means very difficult. As such, I strategically rely on quiet, calm rooms with bathtubs for recovery after long periods of travel. And, importantly, I travel with various items to make my self-care more effective and pleasurable, particularly during these hot, therapeutic baths.

These items often include (as described in caption) :

Continue reading Healing: Story of a bath in Chiang Mai, Thailand

Healing: Story of Pitsanuvej Hospital ~ Phitsanulok, Thailand

Rolling around Pitsanuvej Hospital, Phitsanulok, Thailand. I felt very cared for there, thanks to my “handlers”

What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction” video for context on this series.

This entry, from Phitsanulok, Thailand, late 2016 was written in the weeks following – hence possible tense shifting. (Finally) organized and published May-June 2021 – i now live in Japan, am stable if far from “normal”.  No comments, sympathy requested or accepted. Carry on. 

Phitsanulok, Thailand, Oct. 2016~

[visited this hospital 4 times 2016-18, these notes are from the first 2 visits]

Intro: My various medical diagnoses (central sensitivity syndrome, fibromyalgia, chronic fatigue syndrome / M.E.) are generally diagnoses of elimination meaning, (in brief): finding out what it *isn’t*, and if every other possible thing can be eliminated, these are your diagnoses (given the symptoms etc. blah blah blah).

While there is extensive research for specific bio-markers for these diseases (thanks Open Medicine Foundation et al), comprehensive universal, diagnostic methods do not currently exist (and yeah i know there are loads of folks who have alternate theories, whatever, write your own spiel).

waiting for yet another bus in the rain in Vancouver – was all too much for me. holy anxiety and stress and confusion

While in my [ed note: former] home in Vancouver, Canada, these tests are certainly available, I found the process to be an extremely laborious – ergo: after waiting for specialist referral appointment and meeting, i would be sent for a couple of tests requiring a bus ride to the lab, waiting, dealing with all the commotion and pain (yes) of testing and then following up with the doctor who wouldn’t necessarily give me the “science” behind the results – just a “its fine, nothing to see here”.  The results were *evidently* available on a website, which I found impossible to utilize, and the experience overall was very draining.

As such, I compiled a list of all tests I wanted to undertake, and sought a hospital at which I could do all and “own the data.”

own your data (in a cute folder!)

My thinking is, “the sooner I can eliminate all other possibilities, the sooner I can get on with a proper healing regimen and be assured I was doing everything I could to feel better and heal my body etc.”

getting sensors on for an EEG to check my brain impacted from various injuries and concussions

Continue reading Healing: Story of Pitsanuvej Hospital ~ Phitsanulok, Thailand

“Thunderstorms in the Crash Years” – audio story about #MECFS & #Fibro

Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
 

Amidst a thunderstorm at 4AM on a balcony in Chiang Mai, Dave discusses – with excessive frankness and emotion – various medical conundrums (Fibromyalgia and CFS-ME) and details the physical feelings of “crash mode” as well as the mental strain in dealing with self de-identification and inter-personal relationships, confusion in seeking help, and various alternative treatments.

audio story about #MECFS & #Fibro, just click play below

Always be kind for: Thunder in the Crash Years – Postcard #75 (75MB, 37:09, mp3, stereo)

No sympathy or advice requested.

(un-licensed but fairish-use) music by:

  • Tegan and Sara “Wake Up Exhausted” (demo)
  • Billy Bragg “Must I Paint you a Picture” (extended)
  • New Pornographers “The Crash Years” and “Adventures in Solitude” (studio)
 

 

Thunderstorms in the Crash Years – Postcard #75

 

Amidst a thunderstorm at 4AM on a balcony in Chiang Mai, Dave discusses – with excessive frankness and emotion – various medical conundrums (Fibromyalgia and CFS-ME) and details the physical feelings of “crash mode” as well as the mental strain in dealing with self de-identification and inter-personal relationships, confusion in seeking help, and various alternative treatments.

No sympathy or advice requested.

Always be kind for: Thunder in the Crash Years – Postcard #75 (75MB, 37:09, mp3, stereo)

Continue reading Thunderstorms in the Crash Years – Postcard #75

“Unrest” Documentary about CFS-ME

Dave gazes at Rodin's interpretation of the Gates of Hell from Dante's Inferno
Dave gazes at Rodin’s interpretation of the Gates of Hell from Dante’s Inferno

Finally up worked nerve/courage to watch @unrestfilm – Cried & laughed + noted im not alone. So much familiar: documenting, crashing, trying *everything*, endless Drs, so much confusion/suspicion/loss. 5 years along #cfsme & #fibro. Was invincible dynamite before.

Also, was funny in the movie to see her obsessing about mold and putting up a tent (I did this), making bone broth (which I did obsessively and one of my former charges now has a bone broth company), all the supplements (which I spent so much money on!), and all the “superfood“ smoothies/drinks/concoctions… Oh, and also all the Chinese herbal remedies cooked up in a big pot making the whole house smell crazy weird.

PS Unrest the film is on Netflix, iTunes and other places.

Beige unrelenting present…

 

Every day brings
An anniversary of something grand
So much promise and vigor
Graceful ambition, earnest yearning
“Don’t let the past affect the future”
Sound so easy
Until the beige unrelenting present
Brings another morning of pain

So many years now
Trying, climbing, sliding
Up the slides of a slippery well
Fighting, accepting, relenting
Leaves with only
Exhaustion from the inevitable slide

The shaggy dog comes to rest beside
Oddly purring softly, sedately
Sharpening his claws
Glancing up at me
Noted
I am left alone

I am left alone

Of logistics and papers of health conundrums…


Hey Pals, remember a week or so ago when I was feeling so blue and grousing about all this paperwork and the anxiety and the stress it causes…?

Well after a mighty effort yesterday, everything is packaged into four envelopes to mail to various government offices, doctors, insurance companies and so on.

But I’ll tell you, it was no fun emotionally or mentally as i listed all the different doctors, treatments, modalities and so on for the past three years. And the net result is of no benefit to me as they simply take out the Canada pension plan disability pymt from my private insurance disability payment (Which, don’t get me wrong I’m incredibly grateful to receive otherwise I would be living in a tarpaper shack by now).

Telling you this as a “victory lap” since I didn’t go out to celebrate with pints and joints till 4:20 AM (instead took a long hot bath with Japanese bath salts, three kinds of soap and some nice tunes in a dark bathroom) 

Plus telling you this so I can let you know I truly appreciate each of you for acknowledging me when I’m losing my shit, offering to help, letting me know that you care and that I’m not invisible.

I know I’m not a real peach to be around these days and as much as I try to be positive and optimistic, there is no mental strength I have to stop wondering “what if?”…

I’ve gotten closer to acceptance in that I accept that I will never be the guy I used to be, and progress will be slow but there is more out there for me to do. 

My revolutions are now much more gentle and usually done from the comfort of a bed.

But truly, thanks, I often regret sharing this shit with all of you since everyone has lives and responsibilities and expectations and problems but, it’s what I know how to do.

Did I mention thanks and that I adore you?

I’ll add a photo of something as people seem to enjoy those :-) and now that I’m done, perhaps I’ll share a new batch of music for your ears soon to overwhelm all the negativity, violence and politics and religion and nonsense in the world.

Occasionally, Dave

Healing: Notes to self (handwritten, various)

healing: when feeling blue… list
healing: i do… list
healing: trust self, float on, rest and calm
healing: conundrums…
healing: perceptive > transitional > within limits