Tag Archives: discouraged

Healing Ramble

Healing: stumbling (but not defeated) & “rescued” by lunch

Briefly: Messed up date with hospital appointments (every time, like lining up dominos to get all doctors/injections/tests lined up on same day and was supposed to be here last Friday) getting some of the stuff done today but means back here again next Friday. Very discouraged :(

*Not smiling* with my eyes

The hospital staff were super accommodating and got me in for “cocktail injection” and with Chinese Medicine Doctor who reviewed my memo and gave a thorough exam of abdomen, pulses and tongue.

TCM Doctor told me pulses are very weak and shallow, my body is fighting and trying but needs rest + Hot Springs and protein.

of course the hospital has flowers on display

I’ll be back next Friday to finish up the parts of the visit didn’t get done this time including inquiries about options for IVIG & Ozone therapy.

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Healing Ramble

Healing: feeling discouraged, wiped out and canceling everything (but fck me, im trying)

Before: Note to self, tomorrow is neurologist check in day at the big city hospital so remember to get a good night sleep #ha {and it’s a good thing you’re laying down right now}. #okayama #mecfs #pwme

Sometimes it gets lonely feeling lost but having a book (and my family waiting) is the key

^^ [Unrelated Edward Hopper painting]

Wishing you all high-thread-count sheets, ideal assortment of pillows, and comfortable bed for sweet dreams nights tonight. I’ll think about my outfit for tomorrow hospital visit. gn wonders

Next day: At #Okayama hospital for periodic check-in for MECFS >> it’s more “administrative“ and re-upping some mild prescriptions as really “nothing can be done“ >> nine years in this week :( and feeling wiped out – and bit blue – about it all

#pwme #shoes #blues #millionsmissing

Later: Gosh, I’m just emotionally drained from it all… Got through it, now waiting to pick up the ‘scrips, might’ve cried a little bit in the hallway… It’s not a calm place although they try. Yes, I am delicate and sensitive. There’s just really “nothing to be done”…

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