Tag Archives: healing journey

Healing: just another hospital visit, annotations

9AM Get out of bed Dave, get out of bed Dave, get out of bed Dave. You’ve got to go to the hospital Dave. Put on clothes Dave, take your medicine Dave, get on the bus Dave. Make sure you’re wearing pants Dave. Oh my goodness, have to decide what shoes to wear Dave.

Yep, just waiting for the bus as usual

10AM OK, I did it… Up, medicines, beard oil’d, snappy outfit-ish, shotgun coffee and out the door just in time and experienced all four of Japan’s seasons within the four minute walk from home to the bus stop.

Felt a little bit more springtime when I first looked out the window

{They taught me well at the school for “worlds worst secret agents”}

All of the seasons, all at once: Grey rainclouds, bright sunshine, crispy windiness all at the same time (on rather warm stuffy bus)

11AM Rocking to Belly (the band)’s “Dove” en route to Okayama University Hospital 岡山大学病院 / usual as only this & Bob Dylan’s basement bootleg are in the basc “music” app for past years (i have stashes in Bandcamp & Relisten)

Along with Belly, I’m a huge fan of Tanya Donelly’s solo EP series “Swan Song” and am partial to her songs in Throwing Muses

PS Also have signed #vinyl

11:30AM This is a “foursquare check-in” from Okayama University Hospital. I think I’m the mayor by now :)

Injections impending / 1st of 8ish checkpoints

12AM Update: nurses love my spring blossom vibe tie

{Many things happened}

My tactic with communicating with hospital doctors is taking a printed memo in both English & Japanese (i use machine assisted translation) as most doctors studied medical terminology in “English or whatever” and having something they can read rather than listen is a huge help

{in preparation, February 8, 2024}

2:45PM At least eight hospital checkpoints completed – both medical and administrative – Plus pharmacy (with all the QR codes and special booklets) and now my secret Kissaten was closed but reopened to serve me this glorious lunch with flowers on the table & 3 beverages.

¥950 + ¥400 for royal milk tea
Continue reading Healing: just another hospital visit, annotations

Healing: rocking hospital visit (plus green kei-truck & ramen)

(Brief) Diary:

Rocked Okayama Uni hospital visit with 4 check points (#mecfs specialist, TCM kampo, IV cocktail & admin tasks)

Thanked the doctors so much for what they’re doing for this weird illness and yes, there’s suddenly so much more research going on. The revolution continues for the missing millions.

+ saw sweet green kei-truck; ate ramen waiting for scrips; & spotted cute Indian/Nepali resto for next time

Came home, long hot bath, now in bed, much medicines to organize. I’m trying…

Bonus: the Ramen shop from the outside, kind of classic

Field Notes: Auroville, observations feeling lost (at first)

Intro / Disclaimer (longer than actual notes): I hesitate to publish this flashback diary, not because I fear away from my notion of embracing translucency in personal archaeology, but rather because these are notes from the first couple of days and after sort of a disconnected start (keep in mind, I had just come out of several weeks of fairly solitary time at an Ayurveda hospital).

Anyhow my (I don’t know how to say it) my “community building instincts” kicked in and I made friends with some fun Italians who had a house and some herb, we did some slacker yoga, met a young Indian man studying sustainable architecture and connected him with the wider hemp as a building material community which has gone on to be fruitful relationships, met some wonderful wise elder ladies from Iceland and Switzerland, sort of fell into my rhythm.

Matrimandir thatta way

Plus, I learned logistics about “how to live there which basically is “if you can contribute something, you can make it happen”.

So this part of the story which sounds a little bit bleak and, in many ways is accurate though as in recent times (as a round this up in 2022,) there are emerging and ongoing controversies about how a place like this should be governed which brings in a lot of questions about privilege, colonialism, ecology, status of the land itself, the intentions of founders (and how much that matters and how is to be interpreted), which all brings tension between long timers, and newer inter-lopers, and the people around the international enclave who are just living and trying to make the best of their life in a larger country which still kind of figuring out who wants to be in the bigger world.

oh here is Matrimandir

So,… there’s this part of the story and then the part where I had to leave suddenly upon the passing of my mother and make a rapid trip to Utah, (talk about culture shock!), on the middle, there were some pleasantness which I’ll try to articulate along the way under separate cover.

In short, I found that there was a need for archivists, librarians, radio talkers, communications types and I suddenly saw how I might fit in and disappear there forever.

Of course I loaded up on artifacts, ephemera and items from the bookstore with the teachings of the founders and various dispatchers and missives about peace and community. (Some made it in to a scrapbook chronicling the heart-wrenching trip from India to Utah and beyond).

I’m saying this because there’s a lot more to say but in the meantime I was also dealing with the crisis of the withdrawal of Rs.1000 and Rs.5000 bank notes from circulation which resulted in empty bank machines, and no way to get cash (which was particularly amusing/ironic in this cashless society when one really needed cash to not use cash – but without a bank account well… folks were flying to Sri Lanka just to exchange money and come back which seems to defeat the whole point of an ecologically sustainable and equitable community!).

As fate (if that’s a thing) had it, things went differently, very differently, but this place remains in my head as I try to sort out the conundrum to address here on these first tentative days, but also in my heart simply for the fact that this kind of “unique/weirdness” exists.

I hope to return, or maybe not, I just hope something like this exists in some utopian form. Yep, one can dream right?

Added a few snapshots in here, others will go in a sort of “in between days” post” (pardon my notes to self).

Oh and more about this time appears in audio form as “Field Notes from Elsehwere, Choogle On #121” in which i tell *way too much* about the missing years.

Auroville Observations

So far, its much more intense than intentional. Can a community grow into a city without bureaucracy, boards, meetings, committees, resolutions, motions, applications, infighting, mandatory contributions and acronyms?

Seems perhaps not, or is it? It seems not. Or is it rule dependent? Or personality driven?

But strong leaders go rogue and sex and power corrode.

Frequent complaining, loud motorbikes, local workers and no hellos and/or Namastes.

I have tea in a stainless steel cup. Will food come to me as a notice my cane? I suspect not.

With respect to intention and effort, are you simply trading one framework for another with new names?

various shrines but not “religious”

The spirituality if any is in the background. “Love” is the word but not evident in action. No hugs, no warmth, not cold communication but hardly an emotional symbiotic place or perhaps not physically evident.

Now, one full day in… Awaiting dinner after fumbling through woods on a dark trail. Why am I so unsatisfied? All afternoon scrapbooking, letter/package making-is it that I don’t understand this place yet? The only people who come to talk are other new people or “tourists”.

restaurants are neither businesses nor not-businesses, cash is no cash but cash

I get that long timers make this community for themselves and not for passers-thru but, still… This is neither a spiritual holy land nor brilliantly efficient or revolutionary self-sufficient nor rock ‘n’ roll fun nor artsy-craftsy-though all those elements exist.

No “religion” per se but cult of work-that’s sort of OK-not warm but not clinical. No hugs still, no hellos or help all day long. So many complainers!

Even at the visitor center-everyone is on mobile’s-services spread out making wearing motorcycles and scooters necessary. Townhall was well, a Townhall. You change money for a card with Receipts and *sign here* for everything.

I buy and read all the books and I’m down with the charter and respect and work but somehow it feels oddly-indifferent to outsiders no doubt and unashamed to say-a shortage of houses but no quick prefab dwellings.

Old ideas are cool with local artisans but if a shortage is thwarting progress from only 2800-ish to a projected (and seemingly unreasonable 50,000) how well it scale?

I don’t care as I like small but masterplan seems dependent on a few “lions” and long timers. Sure it makes sense in a traditional conventional sense but it all seems so fragile and rather self-congratulatory while more or less like the old west of the myths of America – pioneer families incorporating a new town while carpet-baggers roll in often with new ideas and are branded “newcomers” even after a decade or so.

New arrivals who wish to settle are vetted after a year or longer. You have to contribute *something* of value (skills, building, biz…) which the community deems needed.

But the “community leadership” is nebulous and confused (from my vantage point). The newbs post bond in form of an air ticket home – your “home” isn’t here, it’s where you “come from” not like rainbow gatherings where the greeting is “welcome home” – maybe because of the outside political situation, hedging bets with a “punt play”.

The pain and guilt of socioeconomic class is palatable and unresolved.

Yet here I feel so alone despite surrounded by people for the first time in weeks. But no eye contact no warmth – to me at least.

Now I will eat and hope it’s just a bad day despite a walk to the visitor center, watching an introductory film, purchasing books with rupees for which change is difficult, chatting on blankets and towel, getting “non-cash” card, buying items to eat: pears and curd and cookies on bed while I listen to favorite music but all I think is “I am lost.”

mighty banyan tree
Continue reading Field Notes: Auroville, observations feeling lost (at first)

Healing Ramble: Story of Ayurveda Health Home, Pokhara, Nepal, 2017

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble Introduction” video for context on this series.

With respect and understanding that not everyone can do *this* – i have another riff about “why” to seek medical care or healing treatment elsewhere (not in US/Canada in this case). For now, use it if you need it, if not just pass along.

Very happy to step into this compound

Handy:

Memo: What follows is transcribed from my diary very shortly after my stay, more or less verbatim, at the risk of being redundant, i have previously shared:

Pokhara, Nepal, 2017

Along my healing journey, I received treatment had the most wonderful Ayurveda Health Home in Pokhara, Nepal.

This company operates two facilities, one in Kathmandu and one in Pokhara where i did my treatment [update: subsequently built a 3rd clinic which looks like a wonderful mix of the 2 and maybe this one is no longer operating?].

The hospitals are part of a German-Nepal partnership. As such, the facility ran on a very prompt German-like schedule, but with exceptionally diligent Ayurvedic practitioners, including several full-time doctor/medical officers.

On the way to AHH

The chief amongst their practitioners is the world-famous Dr. Rishi [update: RIP] – a most elegant and graceful man who emanated healing energy and power. While he is primarily based at the Kathmandu facility, he flew to Pokhara for my intake for which I was very grateful.

Me with Dr Rishi on my “out-take” review in Kathmandu / bless his memory

He had thoroughly reviewed my medical file in advance (including notes from Dr. Veena’s Ayurveda and my tests in Phitsanulok), and the intake was several hours long starting with a long discussion about my symptoms, background and objectives, followed by a massage, then an *extremely thorough* physical inspection.

I should mention that I had originally intended to go back to India and Dr. Veena’s Ayurmantra but for some strange reason, my Indian Visa was declined creating a rapid change of travel plans which became *a little bit expensive* and complicated but I worked through it all by adding in a wander through Malaysia after more hospital tests and treatment in Thailand, OK carry-on…

The days were very busy, but very well organized. I would receive very complete instructions, hands-on, for each of the different treatments, which I would later self-administer.

These included various mouth cleanings, nose cleanings, eye cleanings, eye exercises, meditation, and so on. I also received a series of instructional sessions about the overarching concepts of Ayurveda – the history, background, purposes and information about doshas and the importance of the mind/spirit/body connection.

I also participated on one-on-one yoga sessions. The yoga was very gentle and suited for my body and condition. Rather than complicated poses, started with very simple joint rotations and was very calm rather than stressful experience. (Note: it seems strange to call yoga “stressful“ but doing complicated poses and rapid movement is very difficult for me – as i found later at Peacock Ayurveda Garden).

I received dozens of different kinds of massage, with different oils, different techniques, sometimes two practitioners working on me at once, herbal poultices, salt poultices…

I also went through an extensive series of enemas (don’t freak out)… some to cleanse and some to fortify. It was pretty intense to say the least but I was extremely well supported through the process, and my diet gradually build back up from thin rice porridge and herbal tea, to more substantial food, before I would rejoin the rest of the group for more standard meals.

A warm and welcoming table to convene with other patients
Continue reading Healing Ramble: Story of Ayurveda Health Home, Pokhara, Nepal, 2017

Healing Ramble: Peacock Ayurveda Garden ~ Dikwella, Sri Lanka, 2018

welcome to Peacock Ayurveda Garden

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries (Pacifica, Phitsanulok, Cochin, Pokhara, Dikwella/Galle…) visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble Introduction” video for context on this series.

With respect and understanding that not everyone can do *this* – i have another riff about “why” to seek medical care or healing treatment elsewhere (not in US/Canada in this case). For now, use it if you need it, if not just pass along.

Gist: Along my healing journey, I sought treatment at Peacock Ayurveda Clinic in Dikwella (map to Peacock), close to noteworthy Galle, in southern Sri Lanka. I stayed in-patient for three weeks for a complete “panchakarma“ program.

Background: Certainly, Ayurveda has a number of different flavours in terms of quality and type of the facilities… Ranging from “spa-like“ facilities catering primarily to relatively wealthy or western clientele, to very spartan and rustic, often government-run, facilities treating local people (see Dissanayake diary).

Can be difficult to find the exact right fit mixing with medical needs but with comfort and safety enough to have a relatively enjoyable and stress-free period of time.

This is especially important because doing an extended panchakarma (five medicines) program as it can be rather intense. You are quite literally cleaned out inside and out, and your days are quite packed from early morning onwards with yoga, meditation, meals, doctor consultations, various massages, eye, ears, and nose cleaning, and some of the treatments, let’s just say can be rather “delicate“ or even rather embarrassing. Further, the effects of the treatment can be very intense and lay one out for a couple of days.

I researched a lot of different facilities around Sri Lanka and ended up on this one which seemed, from the outside, to be a good fit for me. While overall it was not near as fulfilling of an experience at my time in Ayurveda Health Home in Nepal or Dr Veena’s Ayurmantra in India, it was a learning experience.

“darling, i’am off to a rejuvenating Pachakarma treatment, see you in a two weeks”

Grounds / Facilities: Of the four different (at the time) Ayurveda facilities at which I received treatment, this one was definitely the most fancy and spa-like.

oh hi buddha

There was a pool (which frankly I was really never able to use but that’s cool), lounge chairs, beautifully manicured gardens with flowers in abundance, and overall the facility was very splendid, filled with interesting antiques, and the patient rooms were like a very nice hotel rooms, even with a private patio area for sitting and resting.

the grounds were immaculate and yes sometimes peacocks

Treatments / Schedule: The treatments were performed in a variety of traditional style huts, which were quite functional as well as charming. Each day, I was issued a fresh sarong and shirt and hat as the treatments are very oily. Additionally, I was given a basket of tiny disposable underwear to wear during the treatments.

Most days, I would have a short consultation with either the senior doctor (a gentleman who was very busy and often/mostly offsite) or a junior doctor (a young lady who was clearly still learning and mostly observing but very kindly).

Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
Dave working on healing at Peacock Ayurveda near Galle, Sri Lanka (with Dr.)
Continue reading Healing Ramble: Peacock Ayurveda Garden ~ Dikwella, Sri Lanka, 2018

Healing Ramble: Chronic Dude, logistical notes about “how to deal with traveling”

Memo: What follows comes from my erstwhile “Healing Journal” – written/compiled on a foggy meandering journey to various countries visiting all manner of hospitals, clinics and exploring various healing modalities and techniques.

Shared here more-or-less unedited for posterity (whatever that is) and to shed light to those struggling who might come across this riff. Please watch the “Healing Ramble, introduction” video for context on this series.

(also riffs already from Thailand, India etc + tips about pros/cons and how-to logistics coming…)

Notes & Travel Tactics / summary

  • Comfort Kit and crash kit
  • Flight time: afternoon or energy time (no early or late night)
  • Airport hotels with bathtub for pre and post flight … wheel right to checkin
  • One place and be part of community 
  • Postcard and scrapbooks along the way … send home by Post offices
  • Playlists
  • Stretches – aisle seat
  • Massage
  • Coconut water/hydration
  • Wheelchair service
  • Block out airport stimulation (blue specs, ear plugs… )
  • Break it up / short hops, stay over
  • Medication CBD/RSO (but don’t take it with you!)
  • First on, Last off
  • Pack extra light, easy schlepp, buy stuff if needed and ditch it)
  • Travel uniform (slippers, compression socks, track suit, slip on shoes
  • Pick the right place
  • Places to get medical help: Thai, India, seems weird but… 
  • Confidence
  • Better than home w/ reruns
  • What are yours? 

Tips and Topics:

  • Crash Mode
  • Triggers (list, notice)
  • Warning signs eyes extremities, foggy, stutter
  • Get to safe place to regroup 
  • Quiet
  • Lights unscrew
  • Sound & batteries
  • Kids
  • Warm and fresh air
  • Electric /weighted blankets
  • Hydration coconut water
  • Magnesium etc. 
  • Soup
  • eyes/ears
  • Bath 
  • Candles
  • Epson/Magnesium/THC Salt
  • No interruption
  • Music/med
  • Reduce ? and sadness? 
  • Slow Docu films
  • Art Postcard therapy
  • Recover – ravenous … no junk!
  • Magnesium is handy
  • Cold bandanas around neck and/or temple
  • Moulded ear plugs
  • Comfy eye mask
  • Perfect pyjamas
Continue reading Healing Ramble: Chronic Dude, logistical notes about “how to deal with traveling”

Healing: (un-detailed) back to doc (& next steps)

Thanks to each of you again for your kind words and thoughts and thinking about me re: #daveo52 / 8-16

But, ummm, ugh.. it’s the same thing every year, I do a little bit too much on my special happenings (i guess #shrug even tho kept it super mellow) and then go into bad #MECFS “crash mode” (i guess?) which landed me in the hospital in great pain (and i’ll spare ya gory details) with sweet slow IV, plus blood test, stethoscopes inspections, touchy pokey pokey, blood draws, and a bonus C 19 test out the door with the medicine) – The beds are not comfortable (but I was smart enough to bring my own eye mask) regardless, the doctors and nurses are very sweet and thorough.

good thing is, it’s like a small clinic but it has x-ray, ultrasound, small lab, small pharmacy so I can do everything in one place… Even got another C 19 test

so slowly putting it back together, I’m not good at this chronic complex illness yet it’s only been nine fcking years #sheesh admittedly disheartened, tough summer.

Anyhow this is my periodic reminder that while I see all of the request for various little tasks coming in, I will get to each eventually but just nothing in the next few days.

Fondly as usual, dvo at Tsuchida cottage

Next day: Back to doc today / stabilizing but completely wiped out & drained from dehydration and related GI stress & spasms / New sheet of test results (for a translation project). Trying to keep spirits up but *so sick of it all*.

Extended note: visited Dr, got some new blood test results which will be a fun translation project, asked him about causes; *not viral so… allergies? and histamine? thyroid? GI? and if he’s got any ideas about why the fck this happens to me repeatedly even though I’m *totally keeping my pace is slow and gentle, eating good foods*… So much throughout my life, I’ve had conundrums related to G.I. system in general from hernias to aggravated bowel to giardia to worms and even esophagus issues and so I guess when I’m weak, this is where the problems manifest and my goodness, I was rewriting my will while twisting and riding on the stern style Japanese bed with the IV gracefully placed in by a woman who would be retired in any other country. Ice parks please (and add some morphine to the drip :())

No real thoughts or answers but at least he was nice and he actually you know, inspects my body with hands and stethoscope and old-school blood pressure cuff.

More: On the 25th, we go to the big city hospital for the neurologist at which point I’m going to attempt to get my records transferred to the university research hospital plus, and (just for my CPO-D pension peace of mind), get a record of all my visits and get some paperwork for my “semi official disability status”.

Didnt have wookies in mind when they designed the slippers

Thanks for the kind words, just showing how good the tiny green slippers and the pink couch go together.

Now: Back in a cool dark room, feeling a little bit discouraged and wiped out but whatever, it’s the routine right?

Healing: feeling discouraged, wiped out and canceling everything (but fck me, im trying)

Before: Note to self, tomorrow is neurologist check in day at the big city hospital so remember to get a good night sleep #ha {and it’s a good thing you’re laying down right now}. #okayama #mecfs #pwme

Sometimes it gets lonely feeling lost but having a book (and my family waiting) is the key

^^ [Unrelated Edward Hopper painting]

Wishing you all high-thread-count sheets, ideal assortment of pillows, and comfortable bed for sweet dreams nights tonight. I’ll think about my outfit for tomorrow hospital visit. gn wonders

Next day: At #Okayama hospital for periodic check-in for MECFS >> it’s more “administrative“ and re-upping some mild prescriptions as really “nothing can be done“ >> nine years in this week :( and feeling wiped out – and bit blue – about it all

#pwme #shoes #blues #millionsmissing

Later: Gosh, I’m just emotionally drained from it all… Got through it, now waiting to pick up the ‘scrips, might’ve cried a little bit in the hallway… It’s not a calm place although they try. Yes, I am delicate and sensitive. There’s just really “nothing to be done”…

Continue reading Healing: feeling discouraged, wiped out and canceling everything (but fck me, im trying)

Healing: Journals and a Postcard

sorry, i guess – no not at all

As I’m stumbling along on my “healing ramble” series (please watch the intro video for overview and disclaimers, not unusually, finding myself a little bit overwhelmed with all the artifacts, memories, items, even data, to share. So, rather than obsess over it just putting it all out there, even if it’s a bit redundant.

The next “real” dispatches from the series include my “tips for travelling with a chronic illness” (which is rather practical and logistical stuff), plus another entry from Sri Lanka, another from Nepal, a tough one from Pacifica California, more from other places i forgot and maybe I’ll even fill in the missing gaps from Adelaide Australia, Austin Texas, and crossing Canada looking for a home.

In the meanwhile here are the fronts of some notebooks and a postcard which allude to some of the above.

Continue reading Healing: Journals and a Postcard